During the middle of April, we had our every 2-month MRI, bloodwork, and Doctor visit. For some reason, it has taken me months to post the report.
This time I didn’t mind the MRI at all. I have been taking ativan 45 minutes before the MRI and this time it REALLY relaxed me. I was so relaxed that I could have fallen asleep if the banging, beeping, buzzing, and assorted other noises hadn’t been so loud. Maybe I am finally getting used to it. And we couldn’t have asked for better results – another clear scan! Yeah! Also, Dr. Bota said my bloodwork was “perfect”. Not a single item was out of range this time. So my doctor visits ( and pre-visit tests) have been stretched out to once every THREE months now. That will be nice not to have to devote every eighth week to Glioblastoma business!
During May, BT and I took a road trip to Santa Fe, New Mexico. Neither of us have ever been to New Mexico and with my recent interest in jewelry-making, I wanted to see some of the Native American craft works there. We were surprised at how lovely New Mexico was. I had it in my mind that NM would be like Arizona desert on steroids. (Too much “Breaking Bad” binge-watching?) Going through Albuquerque, I was able to stop in to Rio Grande Jewelry Supplies, from whom I purchase my copper wire and assorted findings. (Saved myself the shipping costs and also picked up a couple hefty catalogs! It was kinda like being in a candy store.) Such fun. 🎉 And, if you have ever been to Santa Fe, I don’t EVEN have to tell you how lovely and artsy it is. We really enjoyed learning about the early history of New Mexico in the history museum there. Our hotel was very near the Plaza and designed and decorated in Old Pueblo style. (Totally NOT functional for a hotel room, but “ambience” counts for a lot when you are on vacation!) 😎 I just wish I had the stamina of my pre-tumor days so we could have done more walking.
One of the best parts of the trip was that I went without my device the entire time! My doctor told me it was time to give my scalp a break after wearing it for 21 months. It was wonderful. I felt so free for 8 days! And it really was a good thing for my scalp – I had some sore spots that got to heal without being subjected to adhesive and heat and the gel on the electrodes. I was a little concerned that I wouldn’t want to put them back on when we got home. But I was ready to be shaved again and reapply the arrays. Despite the slight inconvenience, having them on my head gives me the comfort of knowing I am receiving treatment.
We have a busy week ahead of us. The good people at Novocure are flying us out to New York City on Tuesday morning, along with 4 other Optune patients and their caregivers for a photo shoot. Apparently they just can’t get enough of my bald head and chubby cheeks! This will be the first time I have flown with my equipment. Wish me luck getting through security. Thank goodness I take my Personal Warrior with me everywhere I go!
The following week, we are re-carpeting some portions of the house. In my craft room we are pulling up the carpet and installing laminate flooring. I’m so excited – with the addition of some Ikea drawers and tabletops, my sister has helped me design a “high-functioning” workspace in my craft room. (Anyway, it looks real good on paper!) But it means I’m out of commission for a few weeks during the transition.
We had a great day today. Along with Meg, Garrett, and the little boys, we drove down to Poway today to visit my dad for Father’s Day weekend. Ben met us there also. While we were there I got to reconnect with my cousin Joyce who I have probably only seen two or three times in my life. She was visiting from Tennessee with her lovely daughter and two gorgeous, delightful grandchildren. So Megan and Ben got to meet a 2nd cousin, and Cole and Reston got to play with their new-found 3rd cousins. The time we spent with them was priceless.
In mid-July I will be having my next MRI. This will be the first time that I have gone 3 months between scans. Hopefully it will be another clear scan and I will get comfortable with going 3 months between scans. Meanwhile, I am certainly feeling good. My memory problems seem to be getting a little worse, but that’s more of a problem for BT than for me. LOL! Life is good! 😀