No new developments in my condition to report (Hallelujah!). I am only updating to ease the minds of anyone who may be concerned due to not hearing from me for a while. NOT to worry! I’m doing well and the only treatment I am taking is the Optune device and plenty of leisure time. My July MRI was excellent again and I won’t be having my next MRI until October.
We enjoyed our trip to New York for a Novocure photo-shoot and tried out flying while using Optune for the first time. It was absolutely fine. No hiccups with security at all, although we were well prepared for an assortment of possible scenarios. NYC is always crazy, but the Novocure people always treat us royally, and we really enjoyed meeting 4 other patients and their caregivers. You can see some results of the photo-shoot by visiting the website at optune.com, where I am posing with two of my new friends. If you click on the blue bar on the lower left (“See the Proof: 5 year study”), it will take you to a page with a head shot of both me and BT. Also, if you click the Facebook icon it will take you to the Optune Facebook page where you will see a photo of all 5 Optune patients that took part in the Photo-shoot.
BT and I are always happy to represent Novocure whenever and however we can. The clinical trial results have really been remarkable considering the bleak prognosis for GBMs. 30 months ago, when I was diagnosed, the expected survival time was about 15 months. In clinical trials with the addition of Optune to the standard chemotherapy, nearly HALF of patients are alive at 2 years.(With NO additional side effects!) (I’m curious to see if John McCain uses Optune.) And now they are conducting trials for other types of cancers. So if you catch me whining about having to carry it around, or complaining about my head itching, I give you permission to wipe that pity party right off of my face! My outcome to date has far exceeded my expectations. And Life is GOOD.
In early August we spent a week up in Morro Bay. This is the 3rd year that we have rented the same house. We really enjoy it. There’s plenty of room for the kids and grandkids. I was really hoping for some nice “beach weather” this year. ( Unfortunately, it was a little too cool and windy for my taste, but after being back in Sun City for the last month, you’d have to be some kind of ungrateful fool to complain about a week of cool, windy weather! 😡) Cole And Reston enjoy the beach in ANY kind of weather and their parents are really good sports, so it was a successful vacation for everyone. 😃 Ben couldn’t make it this year, but Juliet brought a friend from Mesa with her, so we had a full house and a good time. Those little boys are something else! I think they were put on this planet primarily to entertain us and bring us joy. Cole will officially be a “Kindergartener” next week. The way I understand it, Cole and Res will continue to go to Art class on Friday, Cole will go to school on Tuesdays, and Megan will Home-Teach the rest of the week. It is so much fun to be in the position of grandparents, where you can just sit back and observe the way their little minds soak up knowledge like little sponges.
We are going to have another opportunity to escape this unrelenting Sun City heat this summer. This is about the time of year that we start talking about living out our “Golden Years” in a slightly cooler climate. But there are so many complications to considering a move. This is where we have family, GRANDKIDS, wonderful neighbors, my CRAFT ROOM, and, very importantly, my medical services. So we are going to do the next best thing. We are taking an Alaskan Cruise at the end of September. For some reason, thinking about looking at glaciers sounds really good right now! (We’ve been once before and really enjoyed it. . . . and the bonus is: We won’t be following daily politics while we are at Sea!) By the time we get home, we will be into October, with the promise of cooler weather within reach.
That’s all for now. I will plan to update in October, after my next MRI (fingers crossed like always!) ☺️
Marcia and BT