March 1, 2018
My update is longggg overdue. My most recent MRI was in the middle of January. All clear again! I won’t have to worry about that again until early April. I had a nice break from wearing my device over the holidays. We spent Christmas week in Hawaii (kids and grandkids with us) and it was particularly nice to enjoy the fine weather with my head bare.What a delightful vacation we had!
When I last posted, I believe we were anticipating attending an Optune event in Hollywood. It was a lot of fun. It was at the home of Bill Prady, co-creator of The Big Bang Theory. All the guests were from the TV industry; producers, writers, actors, etc. There were several people who seemed interested in writing Optune into a script in the future, which would go a long way to getting more exposure for the device, and for GBM tumors in general.
BT and I participated in an Open House for Optune in Santa Ana last Monday night, and will be going to San Diego the weekend of March 17th to take part in a presentation to a conference of neuroscience nurses. So Novocure, the makers of Optune, have been keeping us busy. We will participate in a 3-day training event with them at the end of March, to better prepare ourselves for future events, and to become official “Ambassadors” for the company, making ourselves available to take personal phone calls from new users of the device to share our experience. Who knew being retired would be so busy?!
As a lot of you know, my 88-year old mother has lived next door to us since her return from Sweden 13 years ago. The time has come when she needs “closer” care. So my siblings, along with me and BT, have been working the last several months investigating best possible solutions, while trying to balance her needs, her wishes, and finances. We wanted to let it be her choice in the final decision. Ultimately, she chose the very gracious offer from my younger sister, Kay, to come live with her and Sal in the San Pedro area.(And just a stone’s throw away from my sister, Lisa, in Rancho Palos Verdes.) It is a major upheaval for Kay and Sal, as they have had to move to a larger home (actually moved this week!) but it looks like it will be a really good situation for everyone, once they are all finally settled. Lisa has been tirelessly working with Mom to determine which of her belongings she wants to take with her to her new home, and which things she is ready to part with. There have been some highs and lows in this whole process, but we are confident that it was none to soon to make these major changes on her behalf.
Speaking of major changes, we got really good news on Christmas morning! Megan and Garrett are expecting in early September! So of course we are really excited about that. We just celebrated Cole and Reston turning 6 and 4, so it’s time for a new baby! (Or, in the words of 4-year old Res, a new “babby”!) (still struggling with his long vowel sounds!) 😉
Another major change for our family; Juliet has earned her RN, and has moved to Utah this week to start a new job in the maternity section of the U of Utah Medical Center in Salt Lake next Monday! She could not have manifested a more perfect job for herself! She will be assigned to a new unit where they are just starting “rooming-in” for babies born with drug addictions. This is the very topic that Juliet did her Research Project on, and she has a very compassionate heart for these babies and their mothers. So we are very excited for her.
We remain grateful for all of you who keep us in your thoughts and prayers, and we hope for all of you that your burdens are light and your joys are bountiful.
Love, Marcia & BT